The Cleft Collective Study

Search for variables in the Cleft Collective study

About the Cleft Collective

The Cleft Collective cohort studies investigates the biological and environmental causes of cleft, the best treatments for cleft and the impact of cleft on those affected and their families.

In the future our research will help answer the three key questions that families ask:

  • What has caused my child’s cleft?
  • What are the best treatments for my child?
  • Will my child be OK (both now and in the longer term)


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The Cleft Collective dataset

Use this website to search through the variables, obtain their identifiers and the number of records with that measure

You can use download lists of selected variables. For direct users, this can be used to extract variables directly. Alternatively, add this list to your data request form to specify the data that you require.


News

Images request 9 July 2025

We would love to add some new photos to our image bank. We use the photos for research and promotional materials, conference presentations, newsletters and more.

If you would like to send us some photos please read more on Facebook.


New resource 1 July 2025

The new variable search tool is now available.

Read more on LinkedIn.


Browse available data


The Cleft Collective Study

Instructions Click to expand/hide

TEST TO SHOW THE WORDING CHANGES DOUGHNUTS!!! Use the search box to filter on keywords or terms. Click on rows to select those variables. Click the Download button to download a csv of the variables that you have selected



These rows are currently selected:


                  

Variable keys Click to expand/hide

ccpnf_blq Mother's baseline questionnaire for the postnatal cohort

ccpnf_blq Mother's baseline questionnaire for the postnatal cohort

ccpnf_blq Mother's baseline questionnaire for the postnatal cohort